Untold Stories: Life with Myasthenia Gravis

10
Medicine #140

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

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Recent Episodes
  • Harnessing Hope: Life Beyond Autoimmune Conditions
    Oct 23, 2024 – 34:07
  • Pushing Past Grief: Staying Positive with MG
    Oct 2, 2024 – 22:04
  • Embracing Gratitude: Remaining Positive in the Face of CIDP
    Sep 18, 2024 – 31:52
  • Facing Frustration: The Hurdles of Life with CIDP
    Sep 4, 2024 – 25:03
  • Building Confidence: Understanding Self-Worth with MG
    Aug 7, 2024 – 35:28
  • Untold Stories will be right back!
    Jun 26, 2024 – 00:21
  • Finding Resilience: Staying Strong with CIDP
    Jun 12, 2024 – 37:22
  • Out of Loneliness: Finding Connection with MG
    May 29, 2024 – 38:45
  • Untold Stories is back for Season Three!
    May 22, 2024 – 02:03
  • Finding Your Pace: Building New Boundaries with MG
    Feb 14, 2024 – 29:27
  • Behind the Seams: Unraveling and Restitching Life with MG
    Jan 31, 2024 – 34:14
  • Understanding and Acceptance: Being an Active Partner in Your CIDP Treatment
    Jan 17, 2024 – 33:16
  • Prioritizing Care: Confronting Postpartum with MG
    Dec 27, 2023 – 32:47
  • Untold Stories is Back!
    Dec 13, 2023 – 01:33
  • Accessing Ambition: Professional Success While Living with MG
    Aug 16, 2023 – 30:28
  • Body & Spirit: Finding Respite Despite MG
    Aug 2, 2023 – 27:25
  • Leading with Love: Thriving in Marriage While Living with MG
    Jul 19, 2023 – 29:43
  • Bonus Episode: The Realities of Life with CIDP
    Jul 12, 2023 – 26:36
  • Building Community: Navigating Young Adulthood with MG
    Jul 5, 2023 – 31:54
  • Connecting to Care: The Importance of Self-Advocacy with MG
    Jun 21, 2023 – 27:31
  • Welcome to Untold Stories: Life with Myasthenia Gravis
    Jun 14, 2023 – 02:13
Recent Reviews
  • MESTRK
    So important to the community
    This podcast is so important for this community. Such a great space to share the stories of the people living with these conditions. Despite the challenges of living with MG, this fills me with so much hope.
  • C Buhay
    It’s the little things
    I was shocked to find this show and see myself in every story. 12 years into life with MG and things have gotten easier to manage. At the end of the day it’s realizing your not alone that fills in the cracks on the hard days. Thank you for making this show!
  • Breesa2
    Untold Story
    I ran upon this podcast while in my car would love to tell the story of my Aunt who was a star athlete and got diagnosed with this disease in 1982 she passed in 88
  • BobbySams109
    I’m just two eps in and already so thankful.
    Wow. This podcast is full of resources that have helped me better understand my MG diagnosis, and connected me with other MG communities. I am based in southern WI and heard about Conquer MG (which is Chicago-based) through this pod… Have already made fast friends with some of the folks involved with that org. Thank you, and please make MORE episodes!
  • yhkocvmigfvnl
    Really
    The audience for this is tiny. There is absolutely no reason I should be hearing ads for this, multiple times an episode, every single podcast I listen to. This has 5 reviews total now, the ads obviously aren’t working chill out
  • RustyBennington12
    So important for the MG community
    This is the first time there has been an entire show dedicated to those living with MG. Thank you for making this!!!!
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